GENERAL TITLES
Young people and chronic illness : true stories, help, and hope
Huegel, Kelly.
Minneapolis, MN : Free Spirit Pub., c1998.
Presents true accounts of young people living with a chronic illness including how they have learned to cope and remain hopeful; also includes strategies for living with a chronic medical problem.
After the diagnosis : transcending chronic illness
Seifter, Julian.
New York : Simon & Schuster, c2010.
A doctor whose life was transformed after his diagnosis with Type I diabetes draws on his experiences as both a patient and a physician to share inspirational stories while outlining eight strategies for optimizing wellness and productivity in the face of chronic illness.
You can beat the odds : surprising factors behind chronic illness and cancer
Stockdale, Brenda, 1960-
Boulder, Colo. : Sentient Publications, 2009.
Outlines scientifically based techniques for overcoming or safeguarding against cancer and other chronic illnesses, identifying lesser-known risk factors that challenge popular opinions about genetics and lifestyle while outlining a six-week program that condenses the findings of hundreds of studies. Original.
Parenting children with health issues : essential tools, tips, and tactics for raising kids with chronic illness, mental illness & special healthcare needs
Cline, Foster
Golden, Colo. : Love and Logic Press, c2007.
Easy for you to say : q & a’s for teens living with chronic illness or disability
Kaufman, Miriam
Buffalo, N.Y. : Firefly, 2005.
A book of advice for teenagers with a wide range of illnesses–including cancer, asthma, spina bifida, and cerebral palsy–as well as those who are visually or hearing-impaired or HIV-positive, answers questions on such subjects as growing up, sex, and drugs.A book of advice for teenagers with a wide range of illnesses, as well as those who are visually or hearing-impaired or HIV-positive, answers questions on such subjects as growing up, sex, and drugs.
The art of getting well : a five-step plan for maximizing health when you have a chronic illness
Spero, David
Alameda, CA : Hunter House ; Berkeley, CA : Distributed to the trade by Publishers Group West, c2002.
A majority of chronic illnesses have no medical cure. The best therapy, asserts the author, is self-care. This comprehensive guide suggests healthy behaviors and holistic approaches while acknowledging the barriers people face in applying them.
A delicate balance : living successfully with chronic illness
Wells, Susan Milstrey
Cambridge, Mass. : Perseus, 2000.
Chronic physical illnesses-such as lupus, Sjogren’s syndrome, fibromyalgia, chronic fatigue syndrome, inflammatory bowel disorders, Lyme disease, interstitial cystitis, multiple sclerosis-take their toll on every aspect of a person’s life. Though millions of people manage to cook, care for children, or work despite their disability, they do so with fatigue, pain, and the grinding uncertainty of living with chronic illness.A thoughtful exploration of this experience, A Delicate Balance provides both up-to-date practical advice and inspiration for the millions of Americans who struggle daily against chronic illness. From locating a suitable health-care provider and making sense of the powerful emotions that accompany chronic illness, to seeking accommodations under the Americans with Disabilities Act and applying for Social Security Disability Insurance, A Delicate Balance is informed by in-depth, personal interviews with patients, care providers, and family members. The result is a compassionate and immensely hopeful book for anyone touched by a chronic disease.
Sick and tired of feeling sick and tired : living with chronic illness
Donoghue, Paul J.
New York : W.W. Norton, 2000.
Unlike a leg in a cast, invisible chronic illness (ICI) has no observable symptoms. Consequently, people who suffer from chronic fatigue, chronic pain, and many other miseries often endure not only the ailment but dismissive and negative reactions from others. Since its first publication, Sick and Tired of Feeling Sick and Tired has offered hope and coping strategies to thousands of people who suffer from ICI. Paul Donoghue and Mary Siegel teach their readers how to rethink how they themselves view their illness and how to communicate with loved ones and doctors in a way that meets their needs. The authors’ understanding makes readers feel they have been heard for the first time. For this edition, the authors include a new introduction drawing on the experiences of the many people who have responded to the book and to their lectures and television appearances. They expand the definition of ICI to include other ailments such as depression, addiction, and obsessive-compulsive disorders. They bring the resource material, including Web sites, up to the present, and they offer fresh insights on four topics that often emerge: guilt, how ICI affects the family, meaningfulness, and defining acceptance.
Strong at the broken places : voices of illness, a chorus of hope
Cohen, Richard M.
New York : HarperCollins Publishers, c2008.
A testament to living with chronic illness presents the experiences of five individuals who have battled such conditions as ALS, Crohn’s disease, and bipolar disorder, offering insight into how their diseases have affected their lives and personal relationships.
An uncertain inheritance : writers on caring for family
New York, NY : William Morrow, 2007.
Today, thirty million people look after frail family members in their own homes. This number will increase drastically over the next decade – as baby boomers tiptoe toward old age; as soldiers return home from war wounded, mentally and physically; as a growing number of Americans find themselves caught between the needs of elderly parents and young children; as medical advances extend lives and health insurance fails to cover them. This compelling book offers both literary solace and guidance to the people who find themselves witness to – and participants in – the fading lives of their intimates.
The etiquette of illness : what to say when you can’t find the words
Halpern, Susan P.
New York : Bloomsbury, 2004.
A compassionate guide on how to negotiate the complexities of illness combines anecdotes and insights with practical advice on how to respond to a friend, colleague, or family member suffering from a serious or chronic illness, covering such topics as doctor-patient communications, end-of-life issues, and more.
Solution-oriented therapy for chronic and severe mental illness
O’Hanlon, William Hudson
New York : Norton, c2003.
O’Hanlon, a Licensed Mental Health Professional, and Rowan (human service, Allegany College of Maryland) offer an approach to therapy with clients with chronic and severe mental illness that emphasizes health and competence rather than pathology and limitations. Their approach suggests methods that therapists can use to help clients develop and use their own resources to solve problems. Many case examples and sample dialogues are included to demonstrate techniques.
Fragile innocence : a father’s memoir of his daughter’s courageous journey
Reston, James, 1941-
New York : Harmony Books, c2006.
A father recounts his daughter’s battle with a devastating chronic illness, its impact on the entire family, and the medical and social implications of such issues as stem cell research, animal organ transplants, and therapeutic cloning.
** More specific titles and subjects are in our catalogue, i.e. Chronic Pain, Chronic Fatigue, Chronic Diseases Therapy
FINANCIAL PLANNING FOR LONG-TERM CARE
Complete guide to planning your estate in Pennsylvania
Ashar, Linda C.
Ocala, FL: Atlantic Publishing Group, 2010.
A step-by-step plan to protect your assets, limit your taxes, and ensure your wishes are fulfilled for Pennsylvania residents.
Health care on less than you think: the New York Times guide to getting affordable coverage
Brock, Fred
New York: Henry Holt and Co., 2006.
Explains how to manage a family’s health-care costs and find affordable coverage, offering analysis of the best options available for families and offering advice on how to maximize one’s coverage while minimizing the expense.
Long-term care: how to plan and pay for it
Matthews, J. L.
Berkeley, CA: Nolo Press, c2008.
Joseph Matthews has been an attorney since 1971, and from 1975 to 1977 he taught at the law school of the University of California, Berkeley. He has for many years been involved in matters relating to seniors.
On-line Resource: NOLO Press at http://www.nolo.com/legal-encyclopedia/long-term-care/
Nolo Press is a well-known and well-respected publisher of legal information geared to the layperson. Their website offers hundreds of free articles on everyday legal topics. Includes a collection of articles on planning for long-term care.
On-line EResource: Law Made Easy Press, LLC at http://www.laweasy.com
Select “Chronic Illness Resources”
On-line EResource: ThomsonGale Legal Forms at http://www.bapl.org
Select “Online E-Resources” and ThomsonGale Legal Forms to access the Medicaid Long Term Care Handbook, Planner, and State Resource Guide plus a wide variety of estate planning legal forms. Requires a BAPL resident card.
Pennsylvania Medicaid: Long-Term Care
Gerhard, Robert C. III
Philadelphia, PA: George T. Bisel Company, 2010
Reference book.
Special needs trusts
Elias, Stephen.
Berkeley, CA: Nolo Press, 2009.
Everything you need to create a trust that provides financial security for your loved one without jeopardizing government benefits.
** Also Search Financial Planning, Long-Term Care, Estate Planning (Pennsylvania), Medical Care (Finance)
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